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Recent FDA Updates: December 2025 – January 2026

FDA has recently released several updates – including new and updated guidance documents, technical amendments, and policy clarifications – that may be relevant to research oversight committees (such as IRBs and IACUCs), investigators, and research organizations. To help research professionals stay informed, HRP has compiled the following summary highlighting updates released between December 1, 2025 through January 27, 2026, that may affect research oversight, study design, and regulatory responsibilities. In keeping with our focus on Helping Research Professionals, this resource is intended to offer practical context and useful reference points as FDA guidelines continue to evolve.

Recent FDA Updates
Date Title Links Brief Summary
Dec 3, 2025 Draft Guidance: Monoclonal Antibodies: Streamlined Nonclinical Safety Studies This draft guidance describes FDA’s current thinking on streamlined, risk-based nonclinical safety programs for monoclonal antibodies, including circumstances where certain animal studies (e.g., repeat-dose or NHP studies) may be reduced, replaced, or omitted when scientifically justified. The guidance emphasizes fit-for-purpose nonclinical packages and alignment with the 3Rs, and may inform IACUC deliberations by reinforcing the need for clear scientific rationale and documentation linking animal use decisions to both scientific objectives and downstream human safety considerations.
Dec 4, 2025 Technical Regulatory Updates: Medical Devices; Quality Management System Regulation Technical Amendments Makes technical and conforming amendments across multiple device regulations (including 21 CFR 812) to align terminology and cross-references with the amended Quality Management System Regulation (21 CFR 820 – amended in 2024). The amendments are non-substantive and do not change underlying regulatory requirements for device research or IDE conduct. Note: Changes to part 812 may impact citations and quoted text in SOPs and other materials. References to § 820.30 are replaced with references to § 820.10(c) (or § 820.10(c) is newly inserted) at § 812.1(a) (Scope), § 812.35(a)(3)(iii)(A) (Definition of credible information), and § 812.35(a)(3)(iv)(A) (Notice of IDE change).
Dec 15, 2025 Final Guidance: Enhancing Participation in Clinical Trials — Eligibility Criteria, Enrollment Practices, and Trial Designs Provides recommendations to improve clinical trial participation and representativeness through scientifically justified eligibility criteria, enrollment practices, and trial designs that better reflect the patients likely to use the product in clinical practice. Encourages minimizing unnecessary exclusions and prospective planning and monitoring to support representative enrollment across clinically relevant patient characteristics. Diverges from the prior 2022 draft guidance “Enhancing the Diversity of Clinical Trial Populations” by shifting from a primary emphasis on demographic diversity to a broader framework of participation and representativeness, incorporating both demographic and non-demographic characteristics (e.g., comorbidities, organ dysfunction, functional status, and real-world access considerations) to support the generalizability and real-world applicability of trial results.
Dec 16, 2025 Final Guidance: Investigator Responsibilities – Safety Reporting for Investigational Drugs and Devices Clarifies investigator responsibilities for identifying, evaluating, and reporting safety information in IND and IDE studies, including the relationship between FDA safety reporting requirements and reporting to sponsors and IRBs. Aims to reduce confusion and improve consistency in safety reporting. Compared to the November 2023 draft guidance, the final guidance more clearly delineates investigator versus sponsor responsibilities (e.g., confirming that investigators are responsible for identifying and reporting safety information to sponsors, while sponsors are responsibe for aggregate safety assessment and FDA expedited reporting), clarifies the distinction between FDA and IRB safety reporting obligations (e.g., recognizing that compliance with IND/IDE safety reporting does not replace local IRB unanticipated problem reporting requirements), and emphasizes that the guidance is intended to clarify existing requirements rather than impose new safety reporting duties on investigators.
Dec 16, 2025 Final Guidance: Sponsor Responsibilities – Safety Reporting Requirements and Safety Assessment for IND and Bioavailability/Bioequivalence Studies Describes sponsor responsibilities for safety assessment and expedited safety reporting under IND regulations, including evaluation of aggregate safety data and submission of IND safety reports. Clarifies expectations to improve signal detection and reduce over-reporting. Compared to the November 2023 draft, the final guidance more clearly emphasizes the sponsor’s responsibility for aggregate safety assessment and clinical judgment, explicitly discourages over-reporting of expedited IND safety reports, clarifies proportional application to BA/BE studies, and reinforces that the guidance is intended to clarify existing safety reporting requirements rather than impose new obligations.
Dec 18, 2025 Final Guidance: Use of Real-World Evidence To Support Regulatory Decision-Making for Medical Devices; Guidance for Industry and Food and Drug Administration Staff Outlines FDA’s expectations for using real-world data and real-world evidence (e.g., registries, EHRs, claims data) to support regulatory decision-making for medical devices, including data relevance, quality, and transparency considerations. Compared to the September 2017 draft, the final guidance reflects FDA’s increased experience with real-world evidence (RWE), shifting from a conceptual framework to a more operational approach that clarifies how RWE may support specific medical device regulatory decisions while emphasizing data quality, methodological rigor, and proportionality to device risk. The final guidance also provides clearer indications of factors relevant to IRB oversight determinations, including whether RWE involves retrospective or secondary data use, data identifiability, and prospective or interventional activities.
Dec 19, 2025 Final Guidance: Processes and Practices Applicable to Bioresearch Monitoring Inspections; Guidance for Industry The Dec 2025 final guidance consolidates and modernizes FDA’s description of BIMO inspection processes. Compared to earlier information sheets which are now withdrawn (clinical investigator inspections; IRB inspections), the final guidance is broader in scope (clinical and nonclinical), more explicit about statutory authority and access to records/systems and adds structured “best practices” for communication before, during, and after inspections including concepts tied to remote regulatory assessments (RRAs) and electronic system access.
Dec 29, 2025 Final Guidance: CDER/Office of New Drugs Streamlined Nonclinical Studies and Acceptable New Approach Methodologies (NAMs) This new resource describes CDER’s current thinking on streamlined nonclinical approaches, including the use of New Approach Methodologies (NAMs), to support drug development while reducing or replacing traditional animal testing where scientifically justified. It outlines drug development contexts in which these approaches may be acceptable based on principles of scientific justification and regulatory decision-making and is intended as a living resource that will be updated over time. The resource may be informative to IACUCs by highlighting considerations that can help evaluate proposed reductions or alternatives to animal use, particularly where sponsors seek to align nonclinical programs with evolving FDA expectations.
Jan 6, 2026 Final (Updated) Guidance: Clinical Decision Support Software The final (updated) guidance clarifies FDA’s interpretation of when clinical decision support software functions are excluded from the device definition or subject to oversight, focusing on factors such as user type (e.g., health care professionals vs. patients), transparency of the software logic, and the ability for clinicians to independently review the basis for recommendations.
Jan 6, 2026 Final (Updated) Guidance: General Wellness: Policy for Low Risk Devices Describes FDA’s enforcement discretion policy for low-risk general wellness products, including fitness trackers and wellness apps, and clarifies the boundary between general wellness functions and regulated medical device claims—important when such tools are used in research or as exploratory endpoints. The final (updated) guidance clarifies FDA’s enforcement discretion approach for low-risk general wellness products, refining how the FDA distinguishes general wellness functions from regulated medical device claims based on intended use, claims, and risk to users. The update reflects FDA’s experience with the expanded use of modern consumer-facing digital health tools and wearables, providing clearer examples and boundaries to help stakeholders determine when wellness products remain outside of FDA oversight and when their use or claims may trigger oversight, including in research settings or when used to generate exploratory endpoints.
Jan 7, 2026 Draft Guidance: Considerations for the Use of Artificial Intelligence To Support Regulatory Decision-Making for Drug and Biological Products This draft guidance outlines FDA’s proposed risk-based framework for assessing the credibility of artificial intelligence (AI) models used to generate data supporting regulatory decision-making for drug safety, effectiveness, or quality, based on a defined context of use across the drug lifecycle. The guidance is directed to sponsors and “other interested parties” and excludes AI used solely for discovery or internal operational efficiencies. Although not directed to IRBs or investigators, the guidance may be indirectly relevant when AI tools are incorporated into clinical research in ways that influence participant risk stratification, safety monitoring, or protocol-driven clinical decisions. In such cases, IRBs and investigators may wish to consider how AI outputs are used within the study, whether appropriate human oversight is maintained, and whether the AI’s context of use affects risk assessment or human subject protections.
Jan 12, 2026 Draft Guidance: Use of Bayesian Methodology in Clinical Trials of Drug and Biological Products This draft guidance provides recommendations on the appropriate use of Bayesian statistical methods in clinical trials to support regulatory decision-making, including design, evaluation, prior justification, success criteria, and reporting expectations. While directed to industry, the guidance may prompt IRBs to look more closely at how studies using Bayesian designs describe data and safety monitoring, including interim reviews, stopping criteria, and oversight roles, and to consider how these features may affect ongoing assessments of participant risk and potential benefit as the study progresses.

HRP Consulting Group Welcomes Tamiko Eto

Expanding HRP’s Leadership in AI Research Oversight

HRP Consulting Group is pleased to announce that Tamiko Eto has joined the firm, bringing over two decades of leadership experience in human subjects research protections at world-class institutions.

Ms. Eto is widely recognized as a thought leader in the interpretation and development of policies governing AI-enabled research, bridging the gap between rapidly evolving technologies and established regulatory frameworks. Her work focuses on building institutional capacity for AI oversight through rigorous yet pragmatic approaches that enable research innovation while safeguarding the rights and welfare of research participants.

Advancing Responsible Artificial Intelligence in Human Subjects Research

Throughout her career, Ms. Eto has played a pivotal role in advancing responsible AI use in research oversight. She led the creation of the world’s first agentic AI IRB protocol submission and review platforms, setting a new standard for how institutions operationalize AI governance within IRB and compliance processes.

She has also co-developed numerous CITI Program and PRIM&R AI training programs, helping research administrators, IRB professionals, and compliance leaders worldwide build fluency in AI concepts and their ethical and regulatory implications.

National and Global Leadership in AI Ethics and Policy

In addition to her applied work, Ms. Eto actively shapes the future of AI ethics and policy through key advisory and leadership roles. These include serving on the AI Ethics Advisory Board for the Institute of Experiential AI and as a Senior Teaching and Research Fellow with the Center for AI and Digital Policy (CAIDP), among other national and international engagements.

Her leadership reflects a forward-looking vision for research ethics—one that anticipates the challenges posed by emerging AI technologies while ensuring innovation remains grounded in integrity, transparency, and public trust.

Strengthening HRP’s Support for Institutions Navigating AI Innovation

At HRP, Ms. Eto will enhance the firm’s ability to support institutions navigating the ethical, regulatory, and operational challenges associated with AI-enabled research. Her expertise strengthens HRP’s capacity to deliver practical, strategic guidance that aligns innovation with compliance and participant protections.

HRP Consulting Group is delighted to welcome Tamiko Eto to the team.

USDA General Terms & Conditions of Awards

On December 31, 2025, the USDA released its first unified General Terms & Conditions (unified T&C’) for Federal Awards.  The unified T&C are intended to replace the patchwork of USDA agency and office specific T&C, giving agencies 45 calendar days to adopt and implement the unified T&C, with any deviations needing to be approved by the Office of the Chief Financial Officer (OCFO).  The 2025 unified T&C applies to all new awards and to significant modifications (as determined by OCFO) to existing awards, to the extent consistent with law.

USDA Press Release – December 31, 2025
USDA Secretary’s Memorandum – December 31, 2025
USDA General Terms and Conditions for Federal Awards – December 31, 2025

Executive Order-related Key Terms & Conditions: Among other terms, the unified T&C formalize the agency’s adoption and implementation of various Executive Orders and Secretary’s Memorandums that were issued in 2025, including:

  1. National Security & Unallowable Costs (Section 6.2) – Establishes unallowable costs due to national security concerns with a list maintained at https://www.usda.gov/about-usda/general-information/staff-offices/office-chief-financial-officer/federal-financial-assistance-policy/national-security-and-unallowable-costs, with a requirement for recipient monitoring of the list and agency communications.
  2. Foreign Ownership, Control or Influence (FOCI) by a Country of Concern (Section 10.7) – Establishes requirement that recipients certify that they are not, and will not, enter into any subawards, contract, or other agreements with any individual or entity that is subject to FOCI by a foreign country of concern or other foreign adversary. [Note: In considering this term, institutions should refer to the definition of “U.S. citizen or entity subject to foreign ownership, control, or influence (FOCI)” at the end of Section 10.0.]
  3. Disclosures (Section 10.8) – Establishes requirements for recipients of awards, and covered individuals working on the award, to complete the Common Forms for Biosketch and for Current and Pending (Other) Support to submit the forms at the time of application and no less than annually.
  4. Malign Foreign Talent Recruitment Program (MFTRP) with 10-year look back (Section 10.9) – Establishes requirement for recipients of awards to certify that they, and any covered individuals working on the award are not participating in, and have not within the past 10 years, any MFTRP on the Common Forms for Biosketch and for Current and Pending (Other) Support and to recertify annually.
  5. Consequences for Violation of Disclosure Requirements (Section 10.10) – Establishes that violations of disclosure requirements may lead to criminal, civil, and/or administrative consequences. 
  6. Dual Use Research of Concern (DURC) and Dangerous Gain-of-Function (Section 10.11) – Establishes requirements for: 
    • compliance with the U.S. Government Policy for Institutional Oversight of Life Sciences Dual Use Research of Concern (DURC – 2014) and the DHHS Framework for Guiding Decisions about Proposed Research Involving Enhanced Potential Pandemic Pathogens (HHS P3CO Framework – 2017).
    • recipient agreement to ensure that USDA awards do not support any research that USDA will not fund (with three specified examples).
    • recipients to have an Institutional Biosafety Committee (IBC) or other Institutional Review Entity (IRE) who are responsible for the review of research involving agents covered by the Policy.
    • registration of Policy-defined select agents or other potential pandemic pathogens with the CDC or USDA
    • special award conditions when USDA funds research that involves the creation, transfer, or use of potential pandemic pathogens. 
    • recipient establishment of an Institutional Contact for Dual Use Research (ICDUR) to serve as an internal resource and agency liaison.
    • record-keeping

      Section 10.11 goes on to define “Dangerous gain-of-function research”, “Dual use research of concern”, “Institutional Contact for Dual Use Research”, and “Life sciences.”
  7. Civil Rights/Diversity Equity and Inclusion (DEI)/Sex vs Gender Ideology funding restrictions (Sections 12.2, 13.5, and 13.6) – referencing Executive Orders (EOs) and Federal anti-discrimination laws, regulations, and policies that recipients must certify compliance with for the duration of the award.
  8. Compliance with Executive Orders and Other Presidential Actions (Section 13.0) – establishes requirements for the USDA and recipient organizations to comply with EOs and other Presidential Actions, listing 12 specific EOs that are “expressly incorporated” into USDA awards.

Other New or Significantly Modified Terms & Conditions – the unified T&C also incorporates several provisions that were either previously unaddressed or that have been significantly modified from prior award requirements, including:

  1. Conflict of Interest (Section 1.7) – establishes requirements for the disclosure and resolution of any conflict of interest (COI), including organizational COIs, requiring recipients to notify USDA within five calendar days of discovery and submit their proposed approach for resolving the conflict. Section 1.7 further authorizes USDA to review and determine the effectiveness of the recipient’s conflict management approach, prohibits recipients from requesting payment for costs associated with conflicted transactions pending USDA’s determination, and identifies cost disallowance and award termination as potential remedies for failure to disclose. [Note: Unlike the PHS fCOI framework, USDA requirements apply to any COI, including organizational COI, require agency review and approval of the conflict management approach, impose a five-day disclosure timeline, and prohibit payment requests for conflicted transactions pending USDA’s determination.]
  2. Records Retention, Access, and Audit Rights (Sections 5, 8, 9) – clarifies and standardizes USDA’s rights to access, inspect, and audit recipient records, including electronic systems, and clarifies record retention and post-closeout access requirements, representing a more explicit and enforceable framework than many prior USDA agency-specific terms.
  3. Expanded Flow-Down Requirements (Sections 5, 10) – requires recipients to flow down applicable USDA compliance, disclosure, and eligibility requirements to subawards and contracts, not solely financial and audit terms, and to actively monitor compliance, representing a broader and more explicit flow-down obligation than many prior USDA agency-specific requirements.
  4. Award Termination for Cause, Convenience, and Policy Noncompliance (Section 7) – establishes department-wide authority to terminate awards for cause, convenience, or based on risk, integrity, or policy concerns, representing a broader and more explicit enforcement framework than prior agency-specific requirements which were primarily focused on performance issues or financial noncompliance.
  5. Suspension of Payments and Imposition of Special Conditions (Sections 5, 7) – establishes USDA’s authority to suspend payments, impose special conditions, and require corrective actions at any point in an award, not only at renewal or close-out; and requires recipients to maintain effective internal controls and oversight.
  6. Remedies Tied to Disclosure and Information Integrity Failures (Sections 7, 10.10) – connects disclosure failures to termination and other remedies, while prior agency-specific terms often treated disclosure errors as correctable administrative issues.
  7. Subrecipient/Contractor Noncompliance (Sections 5, 7, 10) – establishes prime award recipient responsibility for downstream noncompliance and establishes remedies when prime recipients fail to sufficiently monitor and for ongoing downstream violations.

Download Summary

Research Participant Payments – IRS Reporting Update

Effective January 1, 2026, the U.S. IRS reporting threshold for research participant compensation has increased from $600 to $2,000 per calendar year.  While the institutional reporting threshold to the IRS has increased, the fact that research participant compensation is taxable income remains unchanged.  Reimbursement for documented participant expenses related to participation is not taxable.

New Study Submissions:

Study teams should use the following updated template language in their consent materials when participants will receive financial compensation for participation:

Will I be paid for participation? 

You will be paid [describe payment, including the amount, method, timing, and any conditions for receiving payment. When research involves multiple visits or interactions, payment should be prorated and not be contingent upon completion of the entire study.

Payments you receive for participating in research are generally considered taxable income under U.S. tax law. If the total amount you receive from [Institution Name] for research participation in a calendar year is $2,000 or more, [Institution Name] is required to report these payments to the Internal Revenue Service (IRS) and may issue you an IRS Form 1099. To meet this requirement, you may be asked to provide information such as your name, address, and Social Security Number, as required for IRS reporting.

If the total amount you receive is less than $2,000, a tax form may not be issued. However, you are still responsible for reporting all taxable income on your tax return.

[  ] Check this box if you wish to opt-out of receiving payment for participation.

Existing Studies with Active Participants:

For already approved studies with participant payments, study teams should inform active participants of the change in IRS reporting and submit updated consent language for approval with the next amendment, continuing review, or status report submitted to the IRB (whichever comes first).

Active participants, and any newly enrolled participants (enrolled prior to approval of revised consent materials), can be notified of the change using one of the following methods:

  • Verbal notification at the time of the next interaction with the participant, using the new template language as a script.  The date and time of participant notification, as well as a summary of the information provided, should be recorded in the study records.
  • Provision of the [Institution Name] IRB-approved IRS Reporting Update Information Sheet. For new participants, the Information Sheet can be presented as a Consent Addendum.  For already enrolled active participants, the Information Sheet can be provided at the time of the next interaction with the participant.  The date and time of participant notification should be recorded in the study records, along with a copy of the Information Sheet.

Please note that the IRS Reporting Update Information Sheet is IRB-approved and cannot be modified other than insertion of the PI name, protocol title, and contact information where indicated.

Download Sample IRB Instructions
Download Sample Information Sheet

Sample IRB Guidelines for Investigators – Funding Agency Stop Work Orders

HRP’s Commitment to the Research Community

HRP stands with our clients and the broader research community as we navigate the evolving political and economic landscape, including sudden grant funding cuts. We are just a few weeks into this journey, and we expect that as some actions are put on hold while litigated, other actions will be quickly taken to achieve the aims of reducing federal research funding and eliminating funding for certain research altogether.

Today we are providing sample IRB guidelines for investigators with research at risk for stop or pause work orders in the hope that this will be helpful as institutions develop their own instructions and guidelines. Please feel free to distribute to your colleagues. We hope to provide additional guidance and tools over the coming weeks.  If you have suggestions for other helpful resources, please let us know.

Sample IRB Guidance for Investigators

Federal Stop-Work Directives

These guidelines are intended to assist investigators who may or have received a directive from a federal funding agency to stop, pause, or otherwise prematurely end a human research study. 

1. What Should I Do If My Research Is at Risk for a Stop-Work Order?

  • Evaluate whether your research can be modified to reduce the risk of a stop-work directive while maintaining its objectives
  • Explore alternative funding options, including any options for bridge funding to support the safe wind down of research activities
    • [If available insert links to resources]
  • Identify studies where a sudden stop would put participants at risk (e.g., therapeutic studies)
    • Develop an action plan outlining steps that would be taken to safely wind down your research if necessary, considering factors such as:
      • The nature and severity of the risks to participants
  • Communication plans for:
    • Participants
  • What will happen with study data and biospecimens (when applicable)
  • Develop action plans for studies where stopping would not put participants at risk, considering factors such as:
    • The current status of the research (e.g., open to enrollment, closed to enrollment but with active participants, follow up only, data analysis only)
  • [Include a link to any resources to help investigators plan]

2. What Do I Do If I Receive a Funding Agency Directive to Stop or Pause Research?

  • Contact [Insert name of grants office] 
    • [Insert contact information]
  • Contact the IRB (if the IRB of record is an external IRB, contact both the external IRB and the [Insert name of local IRB office]
    • [Insert contact information]
  • Implement your communication plans for Stakeholders, Service Providers, and Facilities.
    • Participant communication plans need to be approved by the IRB for non-exempt research
  • When applicable, take any actions necessary to mitigate immediate risks to participants and then report those actions to the IRB
  • Submit an amendment to the IRB with your action plan to safely wind down research activities (see prior section)

 

Understanding the Updated Final Rule on Research Misconduct: Key Changes and Institutional Impacts

The research community is on the cusp of a significant change with the updated final rule on research misconduct set to take effect on January 1, 2025. This long-overdue revision, the first substantial update in decades, has been meticulously designed to address evolving research practices and enhance integrity within federally funded research projects. As John Baumann, a seasoned research compliance expert with over 25 years of experience, explains, this update not only clarifies procedural expectations but also imposes stricter documentation requirements, fundamentally reshaping how institutions manage allegations of misconduct.

A Timely Update to a Decades-Old Framework

The update stems from a growing need for clarity and modernization. As Dr. Baumann noted, the previous framework, largely unchanged since its inception, was increasingly inadequate in addressing modern research complexities such as multi-site investigations and collaborative studies. This gap prompted extensive community feedback during the drafting process, leading to a final rule that better aligns with current research practices while upholding federal funding accountability.

Notably, while the foundational processes of addressing misconduct—allegation, assessment, inquiry, investigation, and determination—remain unchanged, the updated rule introduces significant procedural refinements. These include expanded definitions of plagiarism, enhanced due process rights for accused individuals, and more explicit documentation requirements throughout every stage of the investigation.

Key Changes and Their Implications

  1. Enhanced Documentation Requirements: Institutions are now mandated to provide detailed reports at every stage, from initial allegations to final determinations. This includes transcripts of interviews, which must also be shared with both the interviewee and the accused, ensuring transparency and fairness.
  2. Addressing Collaborative and Multi-Site Research: The rule explicitly outlines responsibilities in collaborative research settings, recognizing the growing prevalence of multi-institutional projects. This change simplifies the inclusion of additional parties in investigations without restarting the process.
  3. Broader Definitions and Greater Clarity: The rule redefines key terms like “intentional” and “reckless” to guide institutions more effectively. While some subjectivity remains, these definitions aim to standardize interpretations across investigations.
  4. Increased Timeframes: The investigative window has been extended from 120 to 180 days, reflecting the complexities of modern research misconduct cases. However, institutions must still adhere to strict documentation and reporting standards to justify any delays.

Institutional Readiness and Challenges

Implementing these changes presents both opportunities and challenges for institutions. Dr. Baumann underscores the importance of robust electronic systems to manage documentation efficiently. Institutions may also need additional resources, including staff skilled in process management, to navigate the heightened requirements.

Furthermore, institutions are advised to proactively align their policies with the updated rule. Waiting for official templates and guidance, which may not arrive promptly, could leave organizations unprepared for new cases arising in early 2025.

Fostering a Culture of Integrity

The updated rule emphasizes protecting federal funds and ensuring the trustworthiness of research outcomes. This focus highlights the broader mission of promoting ethical research practices. Dr. Baumann’s experiences demonstrate that while these changes increase administrative burdens, they also empower institutions to address misconduct more comprehensively, reinforcing the credibility of academic and scientific pursuits.

Conclusion

The revised rule from ORI represents a pivotal step in strengthening the integrity of federally funded research. Institutions must adapt swiftly, leveraging clear documentation, community collaboration, and process innovation to meet the new standards. As these changes take effect, the collective commitment to ethical research will not only safeguard funding but also elevate the standards of scientific inquiry across the board.

To learn more contact Justin Osborne at osbornej@thehrpconsultinggroup.com.

The Role of AI in Clinical Research: Boosting Efficiency and Addressing Compliance Challenges

The Role of AI in Clinical Research

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In the latest episode of the On Research with CITI Program podcast, host Justin Osborne speaks with Charlie Fremont, an EHR application analyst from Washington University, about the transformative potential and challenges of using AI in clinical research. Their conversation provides a balanced overview of how AI is currently being applied in the field, highlighting real-world use cases and addressing the legal and ethical considerations surrounding these tools.

Generative AI: Enhancing Productivity and Bridging Skills Gaps

Charlie distinguishes generative AI, like ChatGPT, as a technology designed to create new content, such as text or code, based on user prompts. He explains how generative AI can streamline routine tasks, such as building research billing calendars, by translating natural language into executable code. This approach has allowed Charlie to drastically increase his productivity, effectively doubling his output while maintaining accuracy.

A significant advantage of generative AI is its ability to bridge the communication gap between technical and non-technical staff. By serving as a “translator” between research needs and technical implementation, AI empowers non-programmers to create tailored solutions, facilitating collaboration and reducing reliance on traditional IT support.

Addressing Compliance Risks and Data Security

While the potential benefits of AI are substantial, the podcast highlights critical concerns related to data security and compliance. Charlie warns against using generative AI for handling sensitive information, such as personally identifiable or protected health data, as these models may inadvertently incorporate such data into their systems. To mitigate these risks, he suggests using local AI instances that run on secure, non-networked environments.

This cautious approach is crucial in regulated fields like healthcare and research, where compliance frameworks like HIPAA require stringent data protection measures. Charlie emphasizes that any AI adoption must be coupled with clear institutional guidelines and robust compliance checks.

Transformative Potential and Institutional Adoption

Despite the risks, AI adoption is accelerating. Charlie cites a Deloitte survey indicating that 75% of leading healthcare organizations are already using generative AI in some capacity. However, he notes that research-specific adoption has been slower due to the need for extensive legal and compliance reviews.

AI’s role, according to Charlie, should be viewed not as a job replacement but as an augmentation tool—an “extra set of arms” that expands human capabilities by automating repetitive tasks, freeing researchers to focus on more demanding “deep work” (higher-level work). For organizations that effectively integrate these tools, the productivity gains could be transformative.

Finding the Right Balance: Efficiency and Safety

The episode concludes with a call for a balanced approach to AI adoption. Charlie believes that AI’s benefits can outweigh its risks if institutions implement strong safeguards and educate staff on responsible use. In the long term, the institutions that will lead in AI adoption are those that manage to leverage these tools while maintaining compliance and ethical standards.

By highlighting both the potential and pitfalls of generative AI, this podcast episode provides a valuable roadmap for research professionals looking to integrate AI technologies into their workflows responsibly.

Listen to the entire conversation on the Practical Uses of AI In Research here

Want to learn more about the role of AI in clinical research? Contact Us.

    Exception Process for Revised Common Rule Single IRB RequirementComparison of Common Rule_FDA_Revised FDA_May 2024Exception Process for Revised Common Rule Single IRB Requirement

    The FDA Regulations cited in this table are primarily from 21 CFR 50 and 56 as these regulations refer to human subject protection and institutional review boards (IRBs). The proposed FDA changes cited in this table are from FDA proposed rules Protection of Human Subjects and Institutional Review Boards and Institutional Review Boards; Cooperative Research. The proposals, if finalized would harmonize certain sections of FDA’s regulations on human subject protection and institutional review boards (IRBs), to the extent practicable and consistent with other statutory provisions, with the revised Federal Policy for the Protection of Human Subjects (the revised Common Rule), in accordance with the 21st Century Cures Act (Cures Act). This table does not attempt to comprehensively address all FDA requirements nor to capture every minor change or nuance in the proposed amendments to the regulations. Comparison of Common Rule_FDA_Revised FDA_May 2024

    Navigating the Complexities of Exception from Informed Consent (EFIC) in Research

    A growing area of research involves exception from informed consent, also known as planned emergency research. Under certain conditions, in an emergency setting, participants can be enrolled in a trial without their consent. This article summarizes the podcast hosted by CITI Program with guest Michael Linke, PhD from the University of Cincinnati and the host Justin Osborne from The HRP Consulting Group where they discussed the regulations and ethical considerations around this important area of research.

    In the dynamic landscape of medical research, certain situations arise where obtaining informed consent from participants becomes impractical. In these instances, researchers may turn to a mechanism known as Exception from Informed Consent (EFIC) to conduct studies aimed at addressing urgent medical needs. A recent discussion sheds light on the intricacies of EFIC and its role in advancing medical knowledge.

    EFICinvolves conducting research without obtaining prospective informed consent from participants. The regulations governing EFIC, outlined in 50.24 CFR 40, set strict criteria for its approval. Central to EFIC is the need for studies to address life-threatening conditions with no acceptable treatments, offering potential benefits to participants. Additionally, there must be a limited timeframe to find a legally authorized representative (LAR) for surrogate consent.

    One of the key elements of EFIC studies is community consultation and public disclosure. Before initiating a study, investigators engage with the local community to inform them about the research, address concerns, and seek feedback. This process ensures transparency and community involvement in research activities, although challenges exist in effectively implementing it, particularly in diverse and dynamic communities.

    Despite the regulatory framework established in 1986, recent discussions have highlighted the need for continued review and potential updates to EFIC guidelines. A meeting hosted by the National Institutes of Health (NIH) brought together stakeholders to discuss current practices, challenges, and potential improvements in EFIC implementation.

    One notable topic of discussion was the distinction between EFIC studies and waivers of informed consent, with EFIC presenting a higher threshold due to its stringent criteria and community engagement requirements. The meeting also addressed the evolving definition of “minimal risk” and the scope of conditions eligible for EFIC studies.

    While no immediate regulatory changes are anticipated, ongoing dialogue and collaboration among researchers, regulatory agencies, and institutional review boards (IRBs) are essential to ensure the ethical conduct of EFIC studies. Additionally, advancements in technology, such as remote community engagement through social media, offer new avenues for conducting community consultation activities.

    The ultimate goal of EFIC research remains unchanged: to advance medical knowledge and improve patient outcomes in emergency situations where traditional consent procedures are not feasible. With careful consideration of ethical principles, rigorous oversight, and ongoing dialogue, EFIC studies can continue to contribute meaningfully to medical research while upholding participant welfare and community engagement.

    Listen to the podcast here: On Research Podcast on Exception from Informed Consent (citiprogram.org)

    Interested in learning more about Exception from Informed Consent?  Set up a conversation with one of our consultants info@thehrpconsultinggroup.com.

    Comparison of Common Rule_FDA_Revised FDA_May 2024

    Comparison of Common Rule_FDA_Revised FDA_May 2024

    The FDA Regulations cited in this table are primarily from 21 CFR 50 and 56 as these regulations refer to human subject protection and institutional review boards (IRBs). The proposed FDA
    changes cited in this table are from FDA proposed rules Protection of Human Subjects and Institutional Review Boards and Institutional Review Boards; Cooperative Research.